Accelerated Approval pathway for our ST-920 gene therapy product candidate for the treatment of Fabry disease.

Privacy Policy

Last Updated: June 5, 2023

At Sangamo, we take your privacy seriously. This Privacy Policy (“Policy”) describes how Sangamo collects, uses and shares information relating to an individual person (“Personal Information”), and your rights and choices regarding our Processing of your Personal Information.

Scope

This Privacy Policy applies to sangamo.com and other on- and offline offerings (collectively, the “Services”) owned and operated by Sangamo Therapeutics, Inc. and our affiliates and subsidiaries (collectively, “Sangamo,” “we,” “us,” or “our”) that link to this Privacy Policy, including our clinical trial websites. Please read this Privacy Policy carefully. By interacting with the Services or otherwise providing your Personal Information and other information through our Services, you agree that we may collect, use, share and/or transfer that information in accordance with the terms of this Privacy Policy, subject to your rights and our obligations under applicable law. If you do not agree to this Privacy Policy, please do not access or use the Services or otherwise provide us with your Personal Information.

This Policy does not cover any information collected during clinical trials or other research endeavors that Sangamo participates in, sponsors, or is affiliated with. For information about clinical trials, refer to the Information and Consent form for that trial or study. This Policy also does not apply to Personal Information relating to employees, job applicants, and contractors, who will be provided a separate Privacy Statement from Sangamo where required by law.

Information Collected by Sangamo

Information You Provide to Us

We receive and store any information you knowingly provide to us through our website. If you contact us through our website, we will collect your first and last name, email address, and the contents of your message. If you contact us through one of our clinical trial websites, we will collect contact information you provide, such as your name, email address, and phone number, your location such as your zip code or city and state, and information that we need to qualify you for a study, such as your age, gender, and diagnosis information. Healthcare professionals may choose to provide us with information relating to their specialties, and professional status and affiliations.

If you submit any Personal Information relating to other people to us, you represent that you have the authority to do so and to permit us to use the information in accordance with this Privacy Policy.

Communication with Us

We collect Personal Information from you when you communicate with us, for example when you contact us or correspond with us.

Forums and Social Media

Our Services may provide forums, blogs, social media pages, or other channels where individuals may review purchases, talk about their experience using our Services, or “like” or “share” content to social media. Content provided in these channels is public and not subject to the privacy protections laid out in this Privacy Policy.Your interactions with social media features are governed by the privacy policies of the companies providing these features.

Information Collected Automatically

Whenever you interact with our Services, we automatically receive and record information on our server logs from your browser or device, which may include your IP address, geolocation data, device identification, the type of browser and/or device you’re using to access our Services, and the page or feature you requested.

Additionally, we, as well as third parties that provide content or other functionality on our Services, may use cookies, pixel tags, local storage, and other technologies to collect information automatically through our Services.

These technologies are small data files that we transfer to your browser or device that allows us to provide and enhance our Services. You may be able to change the preferences on your browser or device to prevent or limit your device’s acceptance of these technologies, but this may prevent you from accessing some features.

Analytics

We may use analytics service providers, including Google Analytics, to collect information regarding visitors to our Services, such as their behavior on our Services or information about their demographic. For more information about Google Analytics, see https://www.google.com/policies/privacy/partners/. To opt out of Google Analytics, visit https://tools.google.com/dlpage/gaoptout.

How Sangamo Uses Personal Information

We use the information we collect about you for various business purposes as described below.

Provide, Personalize, and Improve our Services

  • Contract with you and/or fulfill your requests
  • Process applications and transactions
  • Determine your eligibility for clinical trials and studies
  • Allow you to register for events
  • Analyze how you use the Services
  • Understand interest and engagement on the Services
  • Research and develop Services
  • Improve and streamline our Services
  • Communicate with you
  • Other purposes you consent to or are notified of at the time you provide Personal Information

Protect you and our Services, and comply with the law

  • Detect security incidents; protect against malicious, deceptive, fraudulent, or illegal activity
  • Ensure quality control
  • Verify your identity and prevent fraud
  • Debug to identify and repair errors
  • Enforce our terms and policies
  • Audit or other compliance activities
  • Comply with our legal or regulatory obligations, protect your vital interest, or as may be required for the public good

De-Identified and Aggregated Information

We may use Personal Information to create de-identified, aggregated information such as: information about demographics, de-identified location information, information about devices used to access our Services, and de-identified, aggregate information.

Automatic Collection Technologies

As described above, we may use cookies and other automatic collection technologies to collect information automatically through our Services. Cookies are small text files that we or our third-party service providers may transfer to your device when you visit our sites. Cookies retain certain information to help websites recognize a user’s device as they navigate from page to page or when they later return to a website. We use cookies and other tracking technologies to learn how our sites are used, which allows us to analyze and improve the sites’ performance, navigation, and ease of use. Cookies may be served by the entity that operates the website you are visiting (“first party cookies”) or by other companies (“third party cookies”).

Our use of automatic collection technologies such as cookies, pixel tags, and local storage objects fall into the following general categories:

  • Operationally Necessary: Technologies that allow you to access our Services and use our features, and tools that help us identify irregular site behavior and prevent fraudulent activity or improve security.
  • Performance Related: We may use technologies to assess the performance of our Services, including as part of our analytics practices to help us understand how individuals use our Services;
  • Functionality Related. We may use technologies that allow us to offer enhanced functionality on the Services, such as keeping track of your specified preferences.

You can typically turn cookies off through your browser or set your browser to notify you before accepting them. To do this, follow the instructions provided by your browser. Many browsers and devices accept cookies until you change your settings. You can learn more about cookies by visiting www.allaboutcookies.org, which includes additional useful information on cookies and how to block cookies using different types of browsers.

Third-Party Websites

We may offer links to third-party websites or services, which are not controlled by us and not subject to the protections laid out in this Privacy Policy. We do not endorse nor approve any third-party website and we encourage our users to read the Privacy Policy of each service they interact with.

How Sangamo Shares Personal Information

In general, we may share and/or transfer your Personal Information to affiliates or other third parties who assist us in the process of providing products or Services to you, or otherwise perform functions on our behalf. We do not rent nor sell your Personal Information in personally identifiable form to a third party for monetary consideration, except as expressly provided below. In addition, we may disclose information about you to a third party at your request, or if you consent to the disclosure. We may also disclose aggregate or de-identified data that is not personally identifiable to third parties for any purpose.

Affiliates

We may share your information with our affiliated companies.

Service Providers

We employ service providers to perform tasks on our behalf, and we need to share your information with them in order to provide Services to you. Unless otherwise stated in this Policy, our service providers do not have any right to use the Personal Information we share with them beyond what is necessary to assist us.

Business Transfers

We may choose to buy or sell assets, and may share and/or transfer customer information in connection with the evaluation of and entry into such transactions. Also, if we (or our assets) are acquired, or if we go out of business, enter bankruptcy, or go through some other change of control, Personal Information could be one of the assets transferred to or acquired by a third party.

Protection of Sangamo and Others; Legal Compliance

We reserve the right to access, read, preserve, and disclose any information that we reasonably believe is necessary to comply with law, court order, legal process, or government or regulatory requirement; respond to a request from public authorities; enforce or apply our terms of use and other agreements; or protect the rights, property, or safety of Sangamo, our employees, our users, or others.

International Data Transfers

You agree that all information processed by us may be transferred, processed, stored, and accessed from anywhere in the world, including but not limited to the United States or other countries which may have data protection laws that differ from laws where you reside or do business. However, we will handle Personal Information in accordance with this Privacy Policy, and in compliance with applicable law. We have taken reasonable safeguards to require that your Personal Information will remain protected, and we require our third-party service providers to provide appropriate safeguards as well.

Children

We do not knowingly collect nor solicit Personal Information from anyone under the age of 18. If you are under 18, please do not attempt to register for the Services or send any Personal Information about yourself to us. If we learn that we have collected Personal Information from a child under age 18, we will delete that information as quickly as possible. If you believe that a child under 18 may have provided us with Personal Information, please contact us as described below.

Privacy Rights and Choices

You can always opt not to disclose information to us, but keep in mind some information may be needed to contact us or use some features of our Services.You may update your Personal Information and your preferences, or request that we delete your Personal Information, by contacting us as described below. Our response to such requests will be limited to information under our direct control. We will respond to your request in the time and manner required by applicable law. Please note that we may need to retain certain Personal Information for recordkeeping purposes and/or to fulfill any pending request.

You may update your communications preferences or unsubscribe from email communications at any time by following the unsubscribe instructions in our emails. We will comply with these requests unless such communications are required by law or contract, or do not require your consent under applicable laws.

Data Retention

We store Personal Information for as long as you use our Services or as may be necessary to fulfill the purposes for which the information was collected, provide our Services, resolve disputes or establish legal defenses, enforce our terms or other agreements, engage in audits, protect our Services, prevent fraud, comply with the law, or for legitimate business purposes. The criteria used to determine our retention periods include: (i) the length of time we have an ongoing relationship with you; (ii) whether there is an applicable legal obligation; or (iii) whether retention is advisable to enforce our agreements, satisfy applicable statutes of limitations, resolve disputes, or manage litigation or regulatory investigations.

Security

We take steps to treat your information securely and make sure it is treated in accordance with this Privacy Policy. No system is 100% secure, and we cannot ensure nor warrant the security of any information you provide us. Due to the nature of the Internet, there is a possibility that unsecured (unencrypted) email or Internet transmissions could be intercepted and read by third parties. Sangamo assumes no responsibility for interception of confidential information or Personal Information that you send in an unsecured (unencrypted) email message or other Internet transmission to and from this website. Therefore, you should take special care in deciding what information you send to us via e-mail, in a sign-up form or via other Internet transmission. DO NOT SEND INFORMATION RELATING TO YOUR MEDICAL CONDITIONS OR THOSE OF ANOTHER PERSON, OR ANY OTHER SPECIFIC PERSONAL HEALTH INFORMATION, VIA OUR WEBSITE, AS SANGAMO CANNOT BE RESPONSIBLE FOR PERSONAL HEALTH INFORMATION SENT THROUGH OUR WEBSITE. Please keep this in mind when disclosing any Personal Information to Sangamo via the Internet.

Information for European, UK and Swiss Residents

Sangamo Therapeutics, Inc., located at 501 Canal Boulevard, Richmond, CA 94804, USA, is the controller of your Personal Information as described in this Privacy Policy, unless specified otherwise.

If you are in the European Economic Area, United Kingdom, or Switzerland, your Personal Information may be protected by the European Union General Data Protection Regulation, United Kingdom Data Protection Act, or the Swiss Federal Act on Data Protection (collectively, “European Privacy Laws”). If your Personal Information is protected by the European Privacy Laws, you are entitled to certain rights related to your Personal Information. You have the right to access the Personal Information we have collected about you, the right to correct any inaccurate Personal Information we may have collected about you, and the right to supplement any incomplete Personal Information we may have collected from you. In certain circumstances, you have the right to the deletion or removal of your Personal Information, the right to restrict the processing of your Personal Information, the right to obtain and transmit your Personal Information to a third party, and the right to object to the way your Personal Information is being used (including when your Personal Information is processed for direct marketing purposes, or when your Personal Information is processed based upon our legitimate interests).

If you wish to exercise these data privacy rights, or if you have questions or concerns about how we use your Personal Information, please contact us at dataprotection@sangamo.com and we will make efforts to respond to and/or resolve any issues consistent with applicable law. For your protection, when you seek to exercise the rights described above, it will be necessary for us to verify your identity or authority to make the request and confirm that the Personal Information relates to you.

If we are using your Personal Information based on your consent, you may withdraw this consent at any time. Your withdrawal of consent does not impact the lawfulness of our processing up to the point of consent withdrawal, or as otherwise agreed in writing.

Please note that there are exceptions to the various rights listed above. As an example, in the context of a deletion request, in certain circumstances we may have a legal obligation to retain some of your Personal Information.

If you have a data privacy or data use concern that you feel has not been fully addressed, you have the right to lodge a complaint regarding use of your data with the applicable data protection authority. Here is a list of the data protection regulatory authorities: https://edpb.europa.eu/about-edpb/board/members_en.

Our Data Protection Representative in France for purposes of compliance with the GDPR is Sangamo Therapeutics France, SAS with an address of Les Cardoulines HT1, Allée de la Nertière 06560, Valbonne, France. If you want to raise a question or concern with Sangamo or otherwise exercise your rights with respect to your Personal Information, you may contact Sangamo Therapeutics France, SAS at dataprotection@sangamo.com.

Our Data Protection Representative in the United Kingdom for purposes of compliance with the GDPR is Sangamo Therapeutics UK Ltd with an address of Fourth Floor, St. James House, St. James Square, Cheltenham, GL50 3PR, England. If you want to raise a question or concern with Sangamo or otherwise exercise your rights with respect to your Personal Information, you may contact Sangamo Therapeutics UK Ltd at dataprotection@sangamo.com.

Accessibility

This Privacy Policy webpage uses industry-standard technologies and was developed in line with the World Wide Web Consortium’s Web Content Accessibility Guidelines (v. 2.1). If you wish to print this Policy, you may do so from your web browser or by saving the page as a PDF.

Changes to this Privacy Policy

We’re constantly trying to improve our Services, so we may need to change this Privacy Policy from time to time as well, but we will alert you to material changes by placing a notice on our website, by sending you an email, and/or by some other means.

By using the Services after any changes to the Privacy Policy have been posted, you agree to the new Privacy Policy.

Contact Us

If you have any questions or concerns regarding our privacy policies, please contact us at:

Sangamo Therapeutics, Inc.
501 Canal Boulevard
Richmond, CA 94804
dataprotection@sangamo.com

Supplemental Privacy Statement for California Residents

Last updated: June 5, 2023

This Supplemental Privacy Statement applies to residents of California, USA (“you” or “your”), and describes how we collect, use and share your Personal Information, and your rights with respect to your Personal Information.

For purposes of this Statement, “Personal Information” has the meaning given in the California Consumer Privacy Act of 2018, as amended (“CCPA”).

This Statement also does not apply to Personal Information relating to Sangamo employees, job applicants, and contractors, who will receive a separate privacy notice from Sangamo where required by law.

Personal Information collected from California residents

The chart below summarizes how we collect, use and share Personal Information by reference to the categories specified in the CCPA, the sources from which we collect Personal Information, the business purposes for which Personal Information is collected and/or shared, and the categories of third parties with whom Personal Information is shared, describing our practices during the 12 months preceding the effective date of this Privacy Statement. We will not collect additional categories of Personal Information or use the Personal Information we collected for materially different, unrelated, or incompatible purposes without providing you notice and/or obtaining your consent where required by law.

In the past 12 months, we shared or disclosed all of the categories of Personal Information listed below for the business purposes specified.

Category of Personal Information Collected by Sangamo Sources of Personal Information Business Purpose for Collecting/ Sharing Personal Information Category of Third Parties Information is Disclosed to for a Business Purpose
Identifiers.
A real name, alias, online identifier, Internet Protocol address, email address.
  • You or your agent
  • Affiliates
  • Verify your identity, and create and maintain your account/profile
  • Provide customer service and communicate with you
  • Process and fulfill requests, transactions, shipments, & payments
  • Provide and improve our websites, and personalize your website experience
  • Advertise and market our products and services
  • Detect security incidents and protect against malicious, deceptive, fraudulent, or illegal activity
  • Internet service providers
  • Data analytics providers
  • Service providers
  • Professional advisors
Personal information categories listed in the California Customer Records statute (Cal. Civ. Code § 1798.80(e))
A name.
  • You or your agent
  • Affiliates
  • Verify your identity, and create and maintain your account/profile
  • Provide customer service and communicate with you
  • Process and fulfill requests, transactions, shipments, & payments
  • Provide and improve our websites, and personalize your website experience
  • Advertise and market our products and services
  • Detect security incidents and protect against malicious, deceptive, fraudulent, or illegal activity
  • Internet service providers
  • Data analytics providers
  • Service providers
Commercial Information
Records of personal property, products or services purchased, considered, or other purchasing or consuming histories or tendencies.
  • You or your agent
  • Affiliates
  • Verify your identity, and create and maintain your account/profile
  • Provide customer service and communicate with you
  • Process and fulfill requests, transactions, shipments, & payments
  • Provide and improve our websites, and personalize your website experience
  • Advertise and market our products and services
  • Detect security incidents and protect against malicious, deceptive, fraudulent, or illegal activity
  • Internet service providers
  • Data analytics providers
  • Service providers
Internet or other electronic network activity
Browsing history, search history, information on a consumer's interaction with an internet website.
  • Indirectly from your browser or device
  • Verify your identity, and create and maintain your account/profile
  • Provide and improve our websites, and personalize your website experience
  • Advertise and market our products and services
  • Detect security incidents and protect against malicious, deceptive, fraudulent, or illegal activity
  • Internet service providers
  • Data analytics providers
  • Service providers
Geolocation data
Physical location or movements.
  • Indirectly from your browser or device
  • Verify your identity, and create and maintain your account/profile
  • Provide and improve our websites, and personalize your website experience
  • Advertise and market our products and services
  • Detect security incidents and protect against malicious, deceptive, fraudulent, or illegal activity
  • Internet service providers
  • Data analytics providers
  • Service providers

Note: Personal information may be shared with government authorities on a case-by-case basis upon receipt of a lawful request, or where required by law. In the event of a sale or transfer of some or all of Sangamo’s business or assets, we will use reasonable efforts to notify you if your Personal Information will be shared with parties to the transaction(s).

We do not sell or share and have not sold or shared (as those terms are defined by the CCPA) California resident Personal Information (relating to adults and to minors under 18) to a third party in the past 12 months.

See the section entitled “Data Retention” above for a description of the criteria used to determine how long we retain Personal Information. We do not use or disclose sensitive Personal Information for purposes other than those specified in California Consumer Privacy Act Regulations Section 7207 (m).

Rights of California residents

You are entitled to certain rights relating to your Personal Information, including the following:

  1. You have the right to a copy of your Personal Information in our possession, or to receive certain information about our collection, use and/or disclosure of your Personal Information over the past 12 months.
  2. You have the right to request that we correct in our records any Personal Information about you that is inaccurate.
  3. You have the right to request the deletion of Personal Information that we collected about you and retained, subject to certain exceptions.
  4. You have the right to opt out of the sale or sharing of your Personal Information with third parties for targeted advertising purposes, where such a “sale” or “sharing" is occurring (as such terms are defined by applicable law).
  5. You have the right to limit the use or disclosure of your sensitive Personal Information, where collected and as permitted under the CCPA.

If you wish to submit a verifiable request to exercise these rights, you can do so (up to twice within a 12-month period) by either:

For your protection, when you seek to exercise the rights described above, it will be necessary for us to verify your identity or authority to make the request and confirm that the Personal Information relates to you. We will verify your identity by asking you to provide identifying information that we will match to information in our records. Only you or a person that you authorize in writing to act on your behalf may make a verifiable consumer request related to your Personal Information. You (or your authorized agent) must provide documentation signed by you demonstrating that the agent is authorized to submit a verifiable consumer request on your behalf.

Changes to Supplemental Statement

We reserve the right to modify this Supplemental Statement at any time. Changes will take effect immediately upon their posting on the site. If we make material changes to this Statement, we will notify you here that it has been updated, so that you are aware of what information we collect, how we use it, and under what circumstances, if any, we use and/or disclose it.

Contact Us

If you have any questions or concerns regarding our privacy policies or this Supplemental Statement, please contact us at:

Sangamo Therapeutics, Inc.
501 Canal Boulevard
Richmond, CA 94804
dataprotection@sangamo.com